Appendix 1: Participant information sheet and consent form<\/b><\/p>\nParticipant Information Sheet <\/b><\/h2>\n
Name of department: Humanities & Social Sciences
\nTitle of the study: Exploring informed choice for disabled young people in transition.<\/b><\/p>\n
Introduction<\/b><\/p>\n
<\/b>My name is Fraser Mitchell and I am a post-graduate student at the University of Strathclyde studying for an MSc in Applied Social Research.<\/p>\n
\nWhat is the purpose of this investigation?<\/b><\/p>\n
I am interested in how disabled young people are informed about choices for services that support their social care needs at a time in their lives as they progress from school to adulthood.\u00a0 <\/b><\/p>\n
Self-Directed Support (SDS) is seen as a way to increase choice and control for those requiring support to help them live independently.\u00a0 The Scottish Government has recently passed the Social Care (Self-directed Support) (Scotland) Act 2013<\/i> to enable local authorities to make provision about the way social care services are provided.\u00a0 One of the principles of the Act is \u2018informed choice\u2019 when choosing an option for self-directed support.\u00a0 The aim of the research is to find out more about informed choice for disabled young people.\u00a0 <\/i><\/p>\n
Do you have to take part?<\/b><\/p>\n
Participation is voluntary and consent can be withdrawn at any time without providing a reason.<\/p>\n
What will you do in the project?<\/b><\/p>\n
I will be carrying out interviews in the Inverness area on the 25th<\/sup> and 26thh<\/sup> June 2013 and will contact you, with your agreement, to agree a date\/time\/location for interview that is suitable to you.\u00a0 I will want to audio-record the interview (with your permission) using a digital recorder, and download the recording to a PC and later write down on a \u2018word\u2019 document what is said at the interview.<\/p>\n Why have you been invited to take part? <\/b><\/p>\n I am interested in interviewing a range of people who have first-hand experience of informed choice for disabled young adults in transition.\u00a0 Natalie Thomson, Social Worker, Self-directed Support Team, Highland Health and Social Care Partnership has suggested that you may wish to be included in the study.<\/p>\n What are the potential risks to you in taking part?<\/b><\/p>\n No specific risks have been identified for participants in these interviews.<\/p>\n What happens to the information in the project?<\/b><\/p>\n Interview transcriptions will be anonymised (names will be changes) and kept in a secure, locked place, and\/or on a password protected PC.\u00a0 I will not use participant\u2019s names in the dissertation, or name the region where you live\/study, but I would like to use some quotes of what you say.\u00a0 I will ensure that individuals cannot be identified in a any subsequent academic paper or research publication.<\/p>\n The University of Strathclyde is registered with the Information Commissioner\u2019s Office who implements the Data Protection Act 1998. All personal data on participants will be processed in accordance with the provisions of the Data Protection Act 1998.<\/p>\n Thank you for reading this information \u2013 please ask any questions if you are unsure about what is written here.<\/p>\n What happens next?<\/b><\/p>\n With your agreement I will arrange to meet at a time and location suitable to you.\u00a0 We will go through this information leaflet and you will be given the opportunity to ask any questions about the research and about your own participation.\u00a0 You can choose not to participate without giving a reason at any time.<\/p>\n If you would then like to take part in the study you should provide your written consent by signing the attached consent form.\u00a0 Please return this sheet to myself either by e-mail attachment or by post (contact details below).<\/p>\n Researcher Contact Details:<\/b><\/p>\n E-mail: Fraser.Mitchell.100@strath.ac.uk<\/a> <\/b><\/p>\n Address:\u00a0 Fraser Mitchell, Flass Cottage, Crosshill Terrace, WORMIT, Fife, DD6 8PT<\/p>\n Tel.: 07515289627<\/p>\n <\/b>Dr. Alastair Wilson, Senior Research Fellow, University of Strathclyde<\/p>\n e-mail: al.wilson@strath.ac.uk<\/a><\/p>\n tel.: 0141 444 8108<\/p>\n This investigation was granted ethical approval by the University of Strathclyde ethics committee.<\/p>\n If you have any questions\/concerns, during or after the investigation, or wish to contact an independent person to whom any questions may be directed or further information may be sought from, please contact:<\/p>\n Secretary to the University Ethics Committee Telephone: 0141 548 3707 Name of department:\u00a0 Humanities & Social Sciences <\/p>\n <\/p>\n
\nChief Investigator Details:\u00a0<\/b><\/p>\n
\nResearch & Knowledge Exchange Services
\nUniversity of Strathclyde
\nGraham Hills Building
\n50 George Street
\nGlasgow
\nG1 1QE<\/p>\n
\nEmail: ethics@strath.ac.uk<\/a><\/p>\nConsent Form<\/h2>\n
\nTitle of the study: Exploring informed choice for disabled young people in transition.<\/b><\/p>\n\n